Life looks a little different for people with Lupus. Some are able to live a normal life while others have to deal with the outward effects of the disease, depending on the severity.
I was diagnosed with a disease admittedly I haven’t heard before. It started with a joint pain and a flu-like symptoms to which I thought was just the result of successive overtime at work. Not long after, I was feeling feverish, having rashes all over and getting more joint pain. It didn’t get any better week by week so I started seeking medical attention.
Lab results confirmed it was Lupus and I began seeing an expert called Rheumatologist. It was frustrating at first since I had difficulty keeping up with my normal pace, and because Lupus is invisible, some people started to doubt the veracity of the illness, telling me it is just all in the head.
Thankfully today, I am in quiescent state, although I feel some discomfort at times. Lupus has greatly influenced my day to day life. I need to carefully listen to my rhythm. I also have to think well before I make any actions and consider how it would impact my body. Fatigue is a big factor so I am always heedful on where I spend my energy. I work 5 days a week so I ensure that I work with serene intensity. Weekends are normally spend as rest days or for excursions. And whenever there’s a chance, I always see new places because it inspires me to fight harder (I’m seeing Baguio and Bangkok next month).
I have learned to live with it daily and you’ll be surprised how I can manage to tick off some of my mind-blowing bucket list activities. Great thanks to my loved ones who immensely understand what I go through. They have been giving me unwavering support since day 1 and they always have my back whenever I fall over and over. I also have a strong connection with my Physician so it’s easy to open up all my chagrins and frustrations.
Having Lupus is not the end of a meaningful existence on earth. True, it makes life challenging but it also makes it extra beautiful with stories of pain and survival, of inspirations and aspirations and of self-respect and self-worth.
I was unable to write since December 2018 due to reasons you will read later on. Soon, this blog will be teemed with articles about my journey and how I was able to survive the challenges that comes with it.
A great poet once said, “Love each other or perish.” So true, without love we are butterflies with ruptured wings. Love is of cardinal importance and this has been clear to me since then.
Year on year, my physical affection becomes stronger than ever. I always long for love and care especially when pain attacks me. At times I become too clingy just because every love drop makes me feel better. I am just blessed that my family is able to give it all to me, always been there in both my stubbornness and sanity. Surely, friends messages or visits me (when in hospice) but it’s not the same as having someone who will not leave or someone who has both eyes on you protecting you the entire time. Perhaps, this is not just love but something of a greater tag – a spiritual security – knowing that your family would always be there for you.
I am fighting well because of this great love. Thank you for sharing this journey with me and for showing me that life could be challenging but it is always beautiful WITH YOU.
Osmena Peak. Being our first ever trail trip, my friends and I left Cebu at 12 midnight journeying to Dalaguete where Osmena Peak springs. Osmena Peak is Cebu’s highest summit I describe as having clumped green grotesque hills clutching the shorelines of Badian .A lot of tourist flock to this trail spot to behold the spectacular beauty of Mother Earth.
To enjoy a 360 view, it is best to trail in the afternoon as early morning can be too foggy with zero visibility – – which was not our case! We left too early and started moving from Dalaguete junction to Osmena Peak at 4am (Landmark: Seven Eleven and Julie’s Bakeshop). By the time we reached the peak, the anticipated view was impeded with mist, fog and haze (they’re synonyms so whatever you call it anyway).
Good to note:
At the entranceway to Osmena Peak, you’ll have to sign up at the Osmena Peak Hikers’ Center and pay an entrance fee of 30 pesos. Local guides may also approach you and you pay their service at a courtesy rate. Normally 150-200 pesos per guide will do.
Hikers’ Center is open 24 hours, therefore, you can trek any time you want. By midway of the journey, you will find campsites and cabins. You can bring your own tent and set it up at the campsites or rent a cabin. For cabin reservation, you can contact Manang Willy at 09332887208 or 09226801623. Cabin is good for 2-3 person with water, lights and free use of restroom.
Cabin and Campsite
It is advisable to get support from a stick or pole for the track can be too slippery. You can rent one at the entranceway at 10 pesos per stick or pole.
You will also meet these captures below making the trip even more entertaining.
Congratulate thyself for reaching the top, and don’t forget to photo-record such success.
Dalaguete. On the the way back to Dalaguete proper, make time to pass by Mantalongon Public Market. You will lament if you don’t do so as this is the kernel to finding very affordable fresh goods (such a steal!). I was even surprised that cannon ball cabbages only cost 3 pesos a kilo.
These are same vegetables brought to Carbon Market and to some of our supermarkets. By the time it gets to those stores, prices are already doubled even tripled.
Kawasan Falls. You can also make a side trip to Kawasan Falls, Badian. Kawasan Falls is one of the famous waterfalls in Cebu where you can swim and relax around turquoise-azure waters.
Using a private car, it would take around an hour drive to reach San Vicente Church where you can park your car. From the church, you gait for 20 minutes to reach Kawasan Falls. Entrance Fee is 30 pesos per head and Life Vest rental is at 50 pesos per piece.
Varied food stalls will greet you along the way. I tried everything.
There are also rooms where you could stay overnight. Room rate ranges from 1500-2500 depending on the amenities. If you choose to stay only for a short while, you can rent table and chairs at 300 per day.
There are more packages to avail from. You can go for canyoneering at 1500 per head, trekking to see all 9 falls (you would need a guide at 200 service fee for 4 hours), or simply just have a free back massage from the surging water.
Molave Milk Station, Barili. En route back to Cebu City via Barili,you can make a pit stop at Milk Station where you can buy fresh cow and goat’s milk. The place looks like a romantic resto go-to for lovers to enjoy a glass of fresh milk . There are also ice cream gelatos and some candies made available for tourist bon vivants.
A trip is never fun without your crazy friends and I’m glad I made this journey with these two long-time love birds. Shall we go for another crazy ride? Yes, crazy indeed because from Dalaguete en route to Osmena Peak (traveling at 2am), environs suddenly became too dark and hazy because of heavy rains. We were all so scared yet we still continued moving. However, when we only need to travel at about 2KM, we unanimously and suddenly decided to turn back due to our eerie imaginations (what if we’ll fall on the cliff; what if terrorist attacks us or a white lady will just appear). By 4am, we went up again and found ourselves laughing at our own foolishness. Crowd of tourist awaits had we chosen to conquer the remaining 2KM travel. Nonetheless, it was a crazy beautiful adventure. Thank you lovies. 🙂